1. How does iCureCeliac® protect my privacy?
iCureCeliac® takes your privacy and security very seriously. You have control of your health information. You control who views it, what information you’d like to share, and which research studies you’re willing to participate in. Ensuring that your health information remains secure is our utmost priority. Additionally, your health information is anonymized for researchers so they do not have access to your contact information.
2. Will iCureCeliac® share my health information?
You have control over who accesses your health information; these are settings that you select upon creating your profile in iCureCeliac®. However, your health information is only valuable to iCureCeliac® if you allow researchers and the medical and biopharmaceutical industries to access it and use it for research. So we encourage you to allow complete access to your health information knowing that your contact information will not be shared with researchers, and that both your contact and health information will not be shared with the general public. Your health information is providing the critical information we need to advance research toward treatments and a cure for celiac disease and non-celiac gluten/wheat sensitivity.
3. Will researchers ever contact me directly?
Researchers will never contact you directly. Celiac Disease Foundation will inform you of any opportunities to participate in clinical trials or research studies, and you will be able to follow-up with the researcher directly.